The International Society of Nephrology (ISN) strongly believes that people living with kidney disease must be at the heart of global kidney health efforts. As part of its unwavering commitment to patient-centered care, the ISN actively supports several initiatives that uplift and empower the patient voice, ensuring their experiences, needs, and insights are represented at every level of nephrology care and advocacy.
One of the central pillars of this mission is the ISN Patient Liaison Advisory Group. This dedicated group plays a crucial role in shaping ISN programs and strategies by bringing the patient perspective to the forefront of policy development, education, and service delivery. The group helps foster a global dialogue between kidney health professionals and the people they serve, encouraging shared decision-making and more compassionate, effective care.
In another important initiative, the ISN is developing and continuously updating a comprehensive global map of kidney patient organizations. This valuable resource is designed to help individuals living with kidney disease discover and connect with patient-led organizations in their region. Through this interactive tool, users can find communities offering support, education, advocacy, and peer connections—critical elements for navigating the challenges of chronic kidney disease.
We invite you to explore this growing map and see the incredible work being done by patient organizations around the world. Whether you’re looking for emotional support, practical advice, or ways to get involved in awareness efforts, this map is a gateway to meaningful connections.
Do you know of a local or regional kidney patient group making a difference in your community? We welcome your input and encourage you to share details with us. By working together and expanding this global network, we can strengthen the voice of kidney patients everywhere and build a more inclusive and responsive kidney care ecosystem.
Let’s continue building a stronger, more connected kidney community—one patient voice at a time.