Navigating the complexities of rare kidney diseases can be daunting, even for seasoned healthcare professionals. To aid clinicians in meeting this challenge, the International Society of Nephrology (ISN) has developed a comprehensive Rare Kidney Diseases Toolkit. This expertly curated resource is designed to empower nephrologists and other care providers with practical tools to aid in early identification, accurate diagnosis, and evidence-based management of intricate kidney disorders.
Explore the ISN Rare Kidney Diseases Toolkit
Streamlined. Expert-informed. Clinically actionable.
The toolkit provides user-friendly, focused resources on a spectrum of uncommon renal conditions, with particular emphasis on diseases linked to the complement system—a complex part of the immune response that plays a key role in the development of certain kidney pathologies. By enhancing understanding of complement dysregulation, clinicians can more effectively diagnose and manage disorders like atypical hemolytic uremic syndrome (aHUS) and C3 glomerulopathy.
In addition to these, the toolkit includes targeted guidance on several rare diseases, including:
-
Atypical hemolytic uremic syndrome (aHUS)
-
C3 glomerulopathy
-
Fibromuscular dysplasia
-
IgA nephropathy
-
Monoclonal gammopathy of renal significance (MGRS) and amyloidosis
-
Lupus nephritis
This essential resource bridges the gap between complexity and clarity, supporting better outcomes through enhanced clinical insight.