ISN Commission of Nephrology Informatics
Background information and detailed
activities: TheISN Commission on Nephrology Informatics has existed since May 1997 and is a partnership with the NKF cyberNephrology initiative which began July 1, 1997, see: http://www.cybernephrology.org (English) http://www.cybernephrologie.org (French) http://www.kidney.org/professionals/cyber
In this partnership the NKF has in the past provided most of the funding and very valuable expertise from the computer industry the Advisory Board of NKF cyberNephrology) while the ISN provides the remaining funding, high level physician expertise represented by Commission members, and access to international contacts and facilities. A longer and extensively referenced description of the Informatics Commission and its future plans is available: http://www.cybernephrology.org/vision/TechISN.pdf Description of recent activities can be found under “What’s New” at http://www.cybernephrology.org . A spin-off of Informatics Commission activities which is now separate and distinct is the http://www.cyber-medicine.org site devoted to intellectual cross fertilization among medical disciplines – “Enhancing Health Uses of the Internet Across All Areas of Medicine”. Writings of interest include “cyberMedicine – Mainstream Medicine by 2020/Crossing Boundaries” by Kim Solez, M.D. and Sheila Moriber Katz, M.D., M.B.A. In press, Journal of Computer and Information Law 2001 . A major accomplishment has been the creation of a WWW site for the Schrier Atlas of Diseases of the Kidney: http://www.kidneyatlas.org This site includes all 66 chapters from the five volumes covering all areas of nephrology, complete with color graphics and PowerPoint files from each chapter so that one can easily create slide sets tailor made for specific educational purposes. At the moment there is not a comparable resource to this in any area of medicine and the access statistics have been very impressive for a resource geared to physicians rather than the general public: up to 120,000 hits on-line a month with up to 5600 unique visitors a month. One of the important initiatives of the Informatics commission, with increasing NKF participation, is the “Renal-Tech Project: Computers and Internet Connections for Renal Units in Developing Countries”. A WWW site has been created to help solicit computer equipment donation for this project: http://www.renal-tech.org We have previously donated computer equipment to Nigeria. There have been recent very successful donation trips to Nepal, Cuba, and Kosovo, see: http://renalworld.com/dialysisnepal/index.htm
http://cnserver0.nkf.med.ualberta.ca/cn/Nepal/
http://cnserver0.nkf.med.ualberta.ca/cn/Sisters/
http://www.renal-tech.org/RenalTech09.htm
http://cnserver0.nkf.med.ualberta.ca/cn/Kosovo/Title.htm
http://cnserver0.nkf.med.ualberta.ca/cn/Renal_Tech/
http://cnserver0.nkf.med.ualberta.ca/cn/KosovoII/
There is now also a facet of Renal-Tech involving donation of computers to families of pediatric patients with renal disease within the US and Canada. The recipients are selected in cooperation with the Council of Nephrology Social Workers of the National Kidney Foundation: http://www.kidney.org/professionals/CNSW/index.cfm
We have established the ability to create WWW pages “on the fly” using a digital camera and on-site laptop computer to put pictures of meetings on the Internet within moments after they are taken. This capability, which allows true virtual meeting attendance, was first demonstrated at the Sept. 7-10, 1997 Joint Congress of the African Association of Nephrology, the South African Renal Society and the Renal Care Society of South Africa in Durban, South Africa, see: http://cnserver0.nkf.med.ualberta.ca/cybernephrols/African_congress.htm Since then many other international nephrology and transplantation meetings have also been the subject of WWW pages created by NKF cyberNephrology: A small sampling: http://www.med.ualberta.ca/lmp/paris/parispg.htm
http://cnserver0.nkf.med.ualberta.ca/misc/DCA/dca.htm
http://cnserver0.nkf.med.ualberta.ca/misc/Nov1/SOT.htm
http://www.med.ualberta.ca/lmp/ast/ast.htm
http://cnserver0.nkf.med.ualberta.ca/misc/ast/
http://cnserver0.nkf.med.ualberta.ca/misc/travel_images/Santiago_Chile/
http://cnserver0.nkf.med.ualberta.ca/Banff
http://cnserver0.nkf.med.ualberta.ca/misc/buenos_aires/
http://cnserver0.nkf.med.ualberta.ca/misc/Rome/
http://cnserver0.nkf.med.ualberta.ca/cn/Atlanta
http://cnserver0.nkf.med.ualberta.ca/cn/PSN/
http://cnserver0.nkf.med.ualberta.ca/cn/LACARF/
http://cnserver0.nkf.med.ualberta.ca/misc/Africa/
http://cnserver0.nkf.med.ualberta.ca/misc/Bologna/
http://cnserver0.nkf.med.ualberta.ca/misc/Transplant2001/
http://cnserver0.nkf.med.ualberta.ca/misc/Vicenza
We have also created a site for pictures from the ISN Video Legacy Project interview of Robert Kark: http://cnserver0.nkf.med.ualberta.ca/cybernephrols/isn/images/RobertKark.htm
and for the ISN Archive in Amsterdam: http://cnserver0.nkf.med.ualberta.ca/misc/ISN_Archives/images.htm
We have created a database for the Archive at: http://199.105.121.185/plweb-cgi/fastweb.exe?searchform+ISN
Most other activities of the Informatics Commission are joint with the NKF and are well reflected in the NKF cyberNephrology WWW pages: http://www.cybernephrology.org
Eighteen new nephrology Internet discussion groups have been formed since August 1997: 1.NEPHADMIN – for nephrology administrators 2.NEPHBSCI* – nephrology basic science discussion 3.NEPHCNPT* – discussions of individual clinical nephrology cases 4.NEPHDEVEL* – discussion of humanitarian projects and ISN Sister Centres Program 5.NEPHINDIG* – discussion of renal disease in indigenous peoples 6.NEPHJNL* – nephrology/transplantation journal club 7.NEPHMIN – a stripped down version of NEPHROL-DIGEST with all repetition and North American specific content removed, designed for subscribers in developing countries 8.NEPHNPPT* – discussions of individual renal biopsy cases 9.NEPHRONOL* – Spanish – English discussion of nephrology subjects 10.NEPJHIST* – history of renal medicine, ISN Video Legacy Project interview transcripts 11.IFKF-L* – discussion relating to the International Federation of Kidney Foundations 12.MDDIALYSIS – for US dialysis unit directors 13.RENALPRO – e-mail list for nephrology professionals – nurses, technicians, dieticians, social workers, administrators, physicians, engineers, etc. 14.RENALRD – a listserv primarily for those in renal nutrition. 15.KidneyDisease – for adult patients with renal disease 16. NephKids – for parents of children with renal disease 17. ANNET – African nephronet 18. ARABNEPHROL – Arab language nephrology discussion These augment the original NEPHROL group which still continues as a vibrant and useful resource. http://cnserver0.nkf.med.ualberta.ca/cn/nephrol/ Approximately 3,000 subscribers participate in the nineteen groups. We have had spectacular success in the past two years unprecedented in any other area of medicine with two of our discussion groups, ARABNEPHROL and KIDNEYDISEASE. ARABNEPHROL has grown very quickly and now has discussions that equal the best of those on NEPHROL. KIDNEYDISEASE now has nine physician moderators and co-moderators answering patients’ questions. No patient resource of this nature exists in any other area of medicine! In a cooperative venture with the AST and ASTS the transplantation discussions from NEPHROL are reproduced on the CenterSpan WWW site and also appear on the discussion group CENTERSPAN-L, see: http://www.centerspan.org/ Many other technical advances and activities to benefit nephrology worldwide will be possible through the input of the NKF cyberNephrology Advisory Board which meets annually. One of the challenges of the Commission is to make the right choices in exploring new technologies. In this respect our decision to demonstrate Apple’s AirPort wireless 802.11b Internet connectivity between the ISN and NKF booths at the 2000 ASN meeting in Toronto was a prophetic choice as this type of connection is emerging as the dark horse favorite in wireless connection protocols http://www.sciam.com/2001/0801issue/0801scicit4.html . Respectfully submitted. – Kim Solez, M.D., Chair, ISN Commission on Nephrology Informatics September 2002 |