Kidney Health in Disadvantaged Populations Committee

Details: Parent Category: ISN Information

Find out more information about the 8th Conference on Kidney Disease in Disadvantaged Populations – “Disparities in Renal Disease – Moving Towards Solutions”

Regional Action Plan – Cardiovascular Diseases Prevention and Control (2011-2016)

This is a summary of recommendations derived from a Pan-American Health Organization (and ISN) sponsored workshop organized by the CKHDP committee and Latin America Regional Committee in Buenos Aires (Argentina) at the end of June 2010.

This page contains the following sections:

Mission Statement
Objectives
History
Activities
Committee Membership

Evaluation and management and of cardiovascular risk – Recommendations (pdf, 1.3 MB)

Mission Statement

To improve the kidney health of disadvantaged communities in both developing and developed countries, including ethnic and minority groups, that suffer disproportionately from kidney disease and its complications.

Definition of disadvantaged populations: populations at higher-risk for kidney disease including Indigenous peoples such as the Aborigines of Australia, the Maoris of New Zealand, American Indians and Alaska Natives, and Native Hawaiians of the USA, Pacific Islanders, First Nation Communities of Canada and others, as well as racial and ethnic minorities including peoples of black African descent, the migrant populations of Western Europe and other groups, particularly those living in economically disadvantaged communities.

Objectives

To arrange annual meetings to bring together kidney health care professionals committed to the mission of the group.
To advocate for access to renal care for disadvantaged persons suffering from kidney disease.
To assist in the early detection and identification of kidney disease in disadvantaged populations
To act as a liaison between kidney health care professionals that look after these populations and other ISN-GO (Global Outreach) committees.
To promote affordable treatment and management of chronic kidney disease in these populations.
To assist in the development of policy that furthers the cause of kidney disease within developing nations and for disadvantaged communities in developed nations.

History

Since the establishment of the Subcommittee by COMGAN Chairman John Dirks in 1997, the committee has organized several meetings. David Pugsley (Adelaide, Australia) convened the group and organized the first meeting in association with the XIVth congress of the ISN in Sydney, Australia. It was a two day meeting held on aboriginal land at Uluru (Ayers Rock) in Central Australia. The proceedings of the meeting were subsequently published in the journal Nephrology. In 1999, a symposium on Kidney Disease in Indigenous Populations was organzed as a satellite meeting of the the XVth Congress of the ISN in Buenos Aires, Argentina. In October 2000, a workshop focusing on the Genetics of Kidney Disease in Indigenous Populations and Racial and Ethnic Minority Groups was organized within the annual meeting of the American Society of Nephrology (ASN) in Toronto, Canada. Following the World Congress of Nephrology (WCN) in San Francisco in 2001, a two-day satellite meeting was held in Santa Fe, New Mexico on Renal Disease in Racial and Ethnic Minorities and Indigenous Populations. A similar satellite symposium was held in Ensenada, Mexico in November 2003 following the annual meeting of the American Society of Nephrology in San Diego, California. Satellite symposia to the WCN were also organized in Singapore in 2005, in Rio de Janeiro, Brazil in 2007, and in Milan in 2009.

As with the inaugural meeting organized by this group in Central Australia, the proceedings of most of the symposia have been published; the Santa Fe, New Mexico and the Ensenada (Mexico) symposia were published as supplement to Kidney International, Volume 63, S83, February 2003 and Volume 68, S97, August 2005, respectively. The Singapore and Rio de Janeiro symposia were published in Ethnicity and Disease, Volume 16, Spring 2006, and Volume 19, Number 1, Suppl 1, 2009. The proceedings of our meeting in Milan will be published as a supplement to Clinical Nephrology in October 2011.

An important component of these symposia is providing scholarships to trainees and young investigators from underserved communities and developing countries. This scholarship program has made it possible for many young nephrologists to attend and present relevant posters which were carefully reviewed and rated. The interaction and information sharing among the attendees has also allowed the participants to actively focus on practical aspects of kidney health including prevention, detection, and disease management.

In April 2007, at the WCN in Rio de Janeiro, David Pugsley stepped down as a Chairman and his place was taken by Guillermo Garcia-Garcia (Guadalajara, Mexico). In addition to a satellite meeting to WCN 2009 in Milan, our committee has organized two innovative and successful workshops on the Prevention of Kidney Disease in Antigua, Guatemala, April, 2008 and Resistencia, El Chaco, Argentina, April, 2010. The meetings convened representatives from local and regional nephrology societies, regional health ministries officials, the Pan American Health Organization/World Health Organization (PAHO/WHO), and the Latin American Society of Nephrology and Hypertension (SLANH). As a result, for the first time CKD has become part of a major regional program to reduce non-communicable diseases (NCD) in Central and South America and the Caribbean. In collaboration with PAHO and other regional health bodies, this represents a significant move towards assessing and tackling the extent of CKD in Latin America.

Future Activities

1.Publication of the Milan satellite proceedings in Clinical Nephrology
2.Preparing for next Satellite meeting in Victoria BC, Canada (WCN 2011)
3.Co-organize the Workshop on Kidney Disease in Disadvantaged Populations: Focus on South America and the English-speaking Caribbean with the Brazilian Society of Nephrology, in collaboration with ISN-Global Outreach Program Latin America Committee and SLANH. This 3 day workshop will take place in Salvador, Brazil, in the fall of 2011.
4.The Committee, in collaboration with the Carso Institute of Health, has developed and implemented an on-line training program in early detection and control of CKD for Primary Care Physicians. The program is divided in 11 training modules, and is part of a training program on non-communicable diseases that includes Diabetes Mellitus, Hypertension, and Obesity and Dyslipidemias. Mexicos Health Secretariat is implementing the program to train primary health physicians in the prevention and management of these diseases. This can be used as pilot program and if successful could be used in any particular region of the world
5.Implementation of Ren@lnet, an interactive and innovative system in which individuals at risk of/or with CKD, and their families, friends and physicians interact through the use of the internet, cellular phone, and residential and public telephone service. This project is also in collaboration with the Carlos Slim Institute of Health.

Committee Membership (January 2008 – January 2011)

Chair: Guillermo Garcia (Mexico) [email protected]

Core committee members
Keith Norris   USA
Hai Yang Wang   China
Lawrence Agodoa   USA
Fatiu Arogundade   Nigeria
Ricardo Correa-Rotter   Mexico
Kowdle S Prabhakar   Singapore
Jose Suassuna   Brazil
Wendy Hoy   Australia
Karen Yeates   Canada
Mitra Mahdavi-Mazdeh   Iran
Anjali Ganda   USA

Advisory Members
Alfonso Cueto-Manzano   Mexico
Ana Maria Cusumano   Argentina
Martin Gregory   USA
Antonio Lopes   Brazil
Jocemir R Lugon   Brazil
M.K. Mani India
Saraladevi Naicker   South Africa
Benita Padilla   Philippines
Marcello Tonelli   Canada
Santos Depine   Argentina
Shahnaz Shahinfar   USA
Randall Lou-Meda   Guatemala
David Pugsley   Australia